Food (peanut) allergy
http://allergy.hyperboards.com/action/view_topic/topic_id/172
Food (peanut) allergy :: Specific Food Allergies :: Soy Allergy :: Vitamin E :: Print
Vitamin E
Post by Wnt2BSoyFree on Sep 22nd, 2007 at 08:11 pm
How do you know if the tocopheryl or Vitamin E in a product is natural or synthetic?? Also, how can you know when it is made from soy??
The other night, I spent an hour fretting over shower gels and lotions trying to find something that did not have nut or soy ingredients. Almost all of the ones I picked up had tocopheryls in them, which made me feel as though I would never be able start my day safely again.
Post by [deleted] on Sep 22nd, 2007 at 08:50 pm
If you have no luck finding anything
adult-like
"California baby" products are free of all allergens.
http://www.californiababy.com/
Post by Wnt2BSoyFree on Sep 22nd, 2007 at 08:56 pm
I finally picked up St Ives Green Tea Face Wash. I know it is meant for facial use, but it was about the only thing I could find that did not have questionable ingredients or a terrible perfume. So far it is working, but I will look for the ones you mentioned too, thanks!
Post by krasota on Sep 22nd, 2007 at 11:48 pm
dl-alpha-tocopherol is synthetic. d-alpha-tocopherol is not. Synthetic = no soy. Nature = comes from something in nature, possibly soy, possibly sunflower or wheat germ or something else.
Most of the time I call, I find out that it's soy or wheat germ.
Post by [deleted] on Sep 23rd, 2007 at 12:04 am
How about using johnson's baby shampoo for a safe mild shower soap.
It's more economical.
I didn't see any ingredients that resemble the soy aliases.
Post by Wnt2BSoyFree on Sep 23rd, 2007 at 11:44 am
I think I have decided to avoid Vitamin E/tocopherols when the source is not listed directly on the label. If a company is not willing to take the time to list it, I am not going to waste my time calling them to find out or to return a product after the fact. If they want my money, they can post their ingredients...
Post by [deleted] on Sep 24th, 2007 at 08:42 pm
Me too. Besides, all they do is give you that disclaimer about it being top secret. There was one time that I called one of these cereal companies to ask them this because my dd got sick and was in the ER. At first they hit me with the disclaimer and then transferred me to a supervisor. They called me back to ask me question and told me that the ingredietn in question was derived from a combination of oils. When I asked them which they started down the list, peanut, fish, soy and so on ......I went deaf in the middle of it and just said: "are you kidding me" How could they not tell us. There were 3 allergens in the list dd couldn't have and I told them.......we have a right to know about the oils too.
So, I stay away from calling because under the law they can say anything they want to keep from getting into details regarding oils.
Post by Wnt2BSoyFree on Sep 25th, 2007 at 12:08 am
Do you know if a waving a letter from a doctor helps? If so, I think I am going ask mine to write a letter stating that I must be provided with this information due to the life threatening nature of my allergy...
« Last Modified by Wnt2BSoyFree Sep 25th, 2007 at 12:09 am »
Post by [deleted] on Sep 25th, 2007 at 12:20 am
If you call a company and say this usually a representative who just wants the clock to strike 5pm to be able to go home is the one answering the phone. They give you this "I just work here" attitude and read the disclaimers over and over like robots no matter what the question is.
If you walk into a restaurant to say this......they will probably feel threatened. The important thing is that you are reading the cues as to if the person before you knows what the heck you are talking about. If they offer to get a manager....good If the manager comes out and says they will go out back to recheck....better....if he writes what you tell him down before he goes off ......fantastic If he comes back with the bottle of oil in hand....bulls eye
This is an indicator to me that they are willing to work with you. Then I get into a conversation with them as to how they handle crosscontamination and they will have an answer if they have dealt with this. If not and if I trust them I'd help them and say, put aluminum foil down on the grill before putting dd food on it etc etc
The thing is that you will not get this kind of cooperation from Mc Donalds, lets say. There are few restaurants that I get that kind of cooperation most are scared of liability.
One rinky dorey pizzeria I once went to threatened to call the police because I asked them if their cheese was real mozzarella or a blend of some sort. This was after I had explained that my daughter had food allergies. What I did was sat down and told them that I would very much like for them to call the police. So when they didn't, I volunteered to do it and did.
They don't care either, lol.
But you know I don't have to shop there again and I didn't. I did report them to the board of health though.
Post by Wnt2BSoyFree on Sep 25th, 2007 at 12:29 am
I am pretty quite about my allergy when I actually eat at restaurants because I *usually* check things out before I go. The times that I have had reactions thus far been because I was being reckless, and I can't blame anyone but myself for that. What I really am curious about, however, is if, having proof of a serious medical condition, companies can justly deny access to this information on a corporate level?
Post by [deleted] on Sep 25th, 2007 at 12:36 am
I don't know for sure. That's a good question.
Before I was under the assumption that they do only what the law requires. It's like a loop hole for them. They're not breaking any law. And if you want more than that you'd have to make it a legal issue.
The times I've spoken to them they really don't care, stating over and over again what it is that is required of them by law.
Made me so mad. So I just told them well, you've lost a customer and many others will follow.
Post by Wnt2BSoyFree on Sep 25th, 2007 at 09:43 pm
Yeah, I was reading a term paper (included in links board) that touched on the fact that we, as FA individuals really have no legal ground to stand on when it comes to protecting ourselves and ensuring corporate responsibilty to protect consumers.
Post by [deleted] on Sep 25th, 2007 at 11:27 pm
Just imagine what being a very aware FA child in a school setting must feel like. I compare it to being in a land mine. At home you're safe, in the street you're safe, you can pretty much walk away from danger anywhere or stay away from danger.
But in an insensitive, ignorant school they are captives. Like in a cage with a wild animal even. Panic, panic, panic.
Lucky are those whose child has teachers with real knowledge in FA. A teacher who has a family member with FA must feel so comforting to parents.
Post by Wnt2BSoyFree on Oct 22nd, 2007 at 05:35 pm
Just found two great product that are soy-free!!
Fragrance Free Satin Shower Body Wash
Ingredients:
Aqua (Purified Water), Aloe Barbadensis (Aloe Vera) Leaf Gel (Certified Organic), Sodium Myreth Sulfate, Cocamidopropyl Hydroxysultaine, Cocamide MEA, Glycol Stearate (Palm), Vegetable Glycerin (Palm), Chamomilla Recutita (Chamomile) Extract, Camellia Oleifera (Green Tea) Extract, Echinacea Angustifolia (Echinacea) Extract, Rosa Canina (Rosehips) Extract, Glycereth-2 Cocoate, Benzoic Acid, Phenoxyethanol, Sodium Benzoate
Fragrance Free Satin Soap
Ingredients:
Aqua (Purified Water), Aloe Barbadensis (Aloe Vera) Leaf Gel (Certified Organic), Sodium Myreth Sulfate, Cocamidopropyl Hydroxysultaine, Cocamide MEA, Glycol Stearate (Palm), Vegetable Glycerin (Palm), Chamomilla Recutita (Chamomile) Extract, Camellia Oleifera (Green Tea) Extract, Echinacea Angustifolia (Echinacea) Extract, Rosa Canina (Rosehips) Extract, Glycereth-2 Cocoate, Benzoic Acid, Phenoxyethanol, Sodium Benzoate.
You can visit the JASON website for more products (unfortunately, the Fragrance Free products are not listed there). The Fragrance Free line is sold at Kroger where I live, and I have found some of the items online at CVS. You can view the entire line at Total Health Discount.
A note of caution for extra sensitive SA, the body lotion & deodorant both contain soy-based Vitamin E. I have not checked the ingredients on the other items in this line, so it would be a good idea to check them before purchasing.
The CS Rep was very helpful when I called to inquire about several ingredients. I told them I would definately pass the word along about their products and their great service 
P.S. I purchased the body wash the other day, and it is the first one that has not sent me into itching & hives in months. I am so happy!!
« Last Modified by Wnt2BSoyFree Oct 22nd, 2007 at 05:44 pm »
Post by RainbowTVP on Oct 23rd, 2007 at 12:15 pm
I use Neutrogena's Rainbath-- both the blu/green and the brown with no problems. I have never seen anything I recognize as a problem on the list. I did call- don't remember what they said, but obviously it didn't scare me off.
Ingredients:
Purified Water, Sodium Laureth Sulfate, Cocamidopropyl Betaine, Glycerin, Sodium Cocoyl Isethionate, Sodium Methyl Cocoyl Taurate, Disodium Cocamphodiacetate, Polyquaternium-7, Linoleamidopropyl, PG-dimonium Chloride Phosphate, Isostearamidopropyl Laurylacetodimonium Chloride, Aloe Extract, Panthenol, Methylparaben, DMDM Hydantoin, Ethylparaben, Tetrasodium EDTA, D&C Green #5, Caramel, Fragrance, Propylene Glycol, Citric Acid
Tara P
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